Treatment’s ended and the scans are clear. For many cancer survivors, this usually feels like a welcome close to a chapter in their lives and things can finally go back to the way they were. But life after cancer is rarely just about bouncing back to your pre-illness self. It typically means coming to terms with a different version of yourself and a new way of living after illness.
Here are five everyday (but surprising) realities that most cancer survivors have to navigate, even after completing cancer treatment.
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1. Finding your new normal
After going through a life-altering cancer diagnosis, going back to “normal” is more about finding your new balance, rather than returning to your old self.
Adapting to long-term physical changes from cancer treatments, like fatigue, is probably the most apparent. But there are many other new life adjustments to make, like figuring out new routines and goals.
You might even be grappling with deeper questions about life and your sense of identity, so give yourself time, space, and self-compassion to figure out these broader questions.
2. It’s not the end of medical appointments
Even though you’ve completed treatment, it doesn’t mean you’re done with hospitals. Survivors move on to the “follow-up care” phase, which still entails a cycle of scans, bloodwork, follow-ups, and check-ins with your health care team that can stretch out over years.
This helps with managing long-term side effects of treatment and early detection of cancer recurrence. While you may see its value, the back and forth with the hospital system can still be mentally exhausting, especially when you thought this was all over.
3. Cancer treatment effects linger
Even though you’re in remission, your body might still feel the effects of cancer therapy, which can affect your quality of life, confidence, and performance at work. According to the National Cancer Institute, some of the most common physical symptoms cancer patients experience after treatment is over include:
- Fatigue: A kind of tiredness that doesn’t get better with rest and can linger long after treatment
- Brain fog: Difficulty concentrating, memory lapses, or slow processing that can creep into your work or daily conversations
- Pain: People experience varying levels of pain from different causes (including nerve damage or surgical scars)
- Other common effects: Nervous system problems, swelling, ongoing digestive issues, and more
You may feel confused or disappointed about these effects, especially if you expected to feel “back to normal” after a few weeks or months. Be compassionate with yourself, and remember that even if you’re doing everything “right”, like following a healthy diet and getting enough rest, healing doesn’t follow a set schedule.
4. Mixed feelings are normal
Cancer survivors sometimes feel the pressure to be happy and grateful after treatment has ended. You might hear things like “you must be living life to the fullest now” or “you must feel really lucky.”
The truth is, going through cancer is a complex experience, and the feelings that come after might be mixed, too. You might be feeling gratitude. But it can exist right alongside anger, sadness, anxiety, guilt, and even numbness. You can be thankful for your life and still grieve the things you lost through cancer. You might also be dealing with fears of cancer returning.
Cancer survivorship can’t be narrowed down to a single emotion and how you choose to cope with your feelings is also unique to you. The American Cancer Society suggests a few options for getting emotional support, including connecting with other cancer survivors and speaking to a counselor.
5. Unexpected shifts in relationships
You might also see the way people interact with you change after you’ve completed cancer treatment, and it may not always be in ways you expect.
Some of the closest bonds you built while going through treatment might fade, while new relationships might suddenly blossom.
For example, you might experience conflict with friends who don’t understand why you’re not back to your pre-cancer self. Or, you may feel like you need to set more boundaries with a family member who’s struggling to step out of their caregiving role. Sometimes, others you barely heard from during the hard months might come around with delayed support.
These changes can feel confusing, stressful, or even painful. It might take time to iron out these new relationship dynamics — and that’s completely normal. If you find yourself feeling stuck, resentful, or unsure how to communicate what you need, it might be worthwhile to speak to a relationship therapist.
Adapting to life after cancer takes time
Life after treatment looks different for every cancer survivor. For many, it means adjusting to a body that feels unfamiliar, shifting relationships, and emotions that don’t always make sense. Some of these challenges may come unexpectedly. So it’s important to remember that healing doesn’t stop when cancer treatment ends. Fortunately, the resilience you built up during treatment is still there, and it can help carry you through what comes next.
